What an amazing photo. So is everything fine with her now? No other serious worries? Going thru testing and all of the not knowing can drive you mad and it's so wonderful that you hold steadfast to your faith and allow God's hands to guide you. You and your family and in my prayers. Take care**Amy
Beautiful journaling and precious picture. The picture alone brought tears to my eyes. I'm so glad to hear she's fine! We also had a genetic test done for my Xavier a few months ago (he's autistic, we want to know if he has Fragile X), we're still waiting for the results. I try not to think about it or I'll go mad...
As parents our hearts are ripped to shreds when something threatens our child, the only hope we have is to cling to the Lord and pray that He will supply us with what we need in the midst of those times. I am crying for you, for the possibilities you have faced throughout this day. We look at our little ones so much differently after something like this don't we.. I know not a day goes by that I don't stop to study my boys faces and take a picture for we know not the hour or the time and every moment is precious
What wonderful journaling. Did they figure out what IS wrong with her if it's not a genetic disorder? I pray that things are truly fine and you can all have your minds put to rest.
A beautiful photo and poignant journalling. We are all in Gods hands he holds close whoever we are. My sister has learning disability and although sometimes life has been tough she has always been an asset to our family, she keeps us grounded and keeps our mind on the truly important things in life. We don't concern ourselves about trivial issues. I pray for your sweet little daughter.
I don't know what to say. I can only pray for your beautiful baby, and for your family that God will bless & care for your family. Sharing your fears takes courage.
We are given these precious gifts to care for but life is tough and we just don't know how long we have with them. So many thoughts running through my head today! You have scared me baby, wondering if the dreaded words genetic disorder would be true, wondering what this would mean for our family, praying hard that God would let us hold you a little longer. But God is faithful and you are fine! Gweneth's hand as she was playing with toys in the hemotoligist's office at CHOP.
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